{"id":224,"date":"2022-06-30T18:50:38","date_gmt":"2022-06-30T18:50:38","guid":{"rendered":"https:\/\/acklamhall.org\/?page_id=224"},"modified":"2026-06-29T13:48:57","modified_gmt":"2026-06-29T13:48:57","slug":"parents","status":"publish","type":"page","link":"https:\/\/ilf.cricp.org.uk\/?page_id=224","title":{"rendered":"Parents"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">This is the page for parents&#8217; and carers&#8217; FAQs<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"572\" src=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/Guide_to_Managing_Pediatric_Lymphedema_UK_small-1-1024x572.png\" alt=\"\" class=\"wp-image-1575\" srcset=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/Guide_to_Managing_Pediatric_Lymphedema_UK_small-1-1024x572.png 1024w, https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/Guide_to_Managing_Pediatric_Lymphedema_UK_small-1-300x168.png 300w, https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/Guide_to_Managing_Pediatric_Lymphedema_UK_small-1-768x429.png 768w, https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/Guide_to_Managing_Pediatric_Lymphedema_UK_small-1.png 1239w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Causes, Diagnosis &amp; Progression<\/strong><\/p>\n\n\n\n<ol start=\"1\" class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Can lymphedema be cured definitively?<\/mark><\/li>\n\n\n\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">How can we ensure a smooth transition to adult lymphedema care later in life?<\/mark><\/li>\n\n\n\n<li>What is lymphedema?<\/li>\n\n\n\n<li>What could have caused my child&#8217;s lymphedema?<\/li>\n\n\n\n<li>Is lymphedema genetic?<\/li>\n\n\n\n<li>How is lymphedema diagnosed?<\/li>\n\n\n\n<li>Where can we find specialist lymphedema care?<\/li>\n\n\n\n<li>Can lymphedema be prevented?<\/li>\n\n\n\n<li>Can lymphedema be prevented from progressing<\/li>\n\n\n\n<li>What triggers lymphedema to worsen<\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em>Guide for answers<\/em><\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><em>Are there many children with lymphoedema?<\/em><\/li>\n\n\n\n<li><em>What changes should we expect as our child grows?<\/em><\/li>\n\n\n\n<li><em>Can lymphedema spread to other parts of the body?<\/em><\/li>\n\n\n\n<li><em>How will lymphedema affect my child\u2019s growth and development?<\/em><\/li>\n\n\n\n<li><em>What is the long-term outlook for my child? ok<\/em><\/li>\n\n\n\n<li><em>Could lymphedema affect my child\u2019s mobility? ok<\/em><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>SKIN AND NAIL CARE, INFECTION &amp; COMPLICATIONS<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">How should we care for our child\u2019s skin and nails?<\/mark><\/li>\n\n\n\n<li>What can we do to help prevent infections ?<\/li>\n\n\n\n<li>What signs of infection should we watch for?<\/li>\n\n\n\n<li>When should we seek urgent medical attention?<\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em><strong><em>Guide for answers<\/em><\/strong><\/em><\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><em>How do you deal with itching caused by bandages?<\/em><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Treatment&nbsp;<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">What happens if lymphedema is left untreated?<\/mark><\/li>\n\n\n\n<li>What specialist should I see for treatment of my child?<\/li>\n\n\n\n<li>What kind of treatment is available for my child?\n<ul class=\"wp-block-list\">\n<li>At what age should treatment begin?<\/li>\n\n\n\n<li>My child does not always want to wear their compression garments, is it okay to have \u201cdays off\u201d?<\/li>\n\n\n\n<li>From what age can bandaging&nbsp; start?<\/li>\n\n\n\n<li>&nbsp;Is manual lymphatic drainage recommended for my child?<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Does my child need compression garments?\n<ul class=\"wp-block-list\">\n<li>Who will measure my child for compression?<\/li>\n\n\n\n<li>Is over the counter&nbsp; OTC compression as beneficial as make to measure (MTM)?<\/li>\n\n\n\n<li>How often should compression garments&nbsp; be replaced?<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Can we get funding for treatment<\/li>\n\n\n\n<li>Is there any drug to help lymphoedema?<\/li>\n\n\n\n<li>Are there surgical options for consideration?<\/li>\n\n\n\n<li>What new treatments or research developments should we be aware of?<\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em><strong><em>Guide for answers<\/em><\/strong><\/em><\/strong><\/p>\n\n\n\n<ul start=\"7\" class=\"wp-block-list\">\n<li><em>My child does not always want to wear their compression garments, is it okay to have \u201cdays off\u201d? ok<\/em><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>SELF-MANAGEMENT AND INDEPENDENCE<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">When is it time for my child to become involved in their own care?<\/mark><\/li>\n\n\n\n<li>Can self-lymph drainage and self &#8211; bandage be taught for home use ?<\/li>\n\n\n\n<li>Are there tools to help put on (don) and take off (doff) compression garments <\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em><strong><em>Guide for answers<\/em><\/strong><\/em><\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><em>Are there any easy and effective self-lymphatic drainage techniques?<\/em><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>LIVING WITH LYMPHEDEMA : SCHOOL, HOLIDAYS ,SPORTS &amp; NUTRITION<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Can my child participate in sports and physical activities? Ok<\/mark> <\/li>\n\n\n\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Should teachers and caregivers receive special instructions? <\/mark><\/li>\n\n\n\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Is there any special nutrition for lymphedema?<\/mark><\/li>\n\n\n\n<li>What exercises are most beneficial for children with lymphedema?<\/li>\n\n\n\n<li>Are there any activities my child should avoid? ok<\/li>\n\n\n\n<li>What kind of food is better or worse for lymphedema?<\/li>\n\n\n\n<li>Are there any foods or drinks that should absolutely be avoided?<\/li>\n\n\n\n<li>Are there any restrictions on travel, especially flying<\/li>\n\n\n\n<li>What precautions should we take during hot weather?<\/li>\n\n\n\n<li>Is good footwear important for my child?<\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>EMOTIONAL, SOCIAL &amp; PSYCHOLOGICAL WELL-BEING<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Are there support groups for children with lymphedema and their families?<\/mark><\/li>\n\n\n\n<li>How can we support our child\u2019s emotional well-being?<\/li>\n\n\n\n<li>How can we improve adherence for treatment and garment?<\/li>\n\n\n\n<li>How can we help our child cope with questions or comments from peers?<\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em><strong><em>Guide for answers<\/em><\/strong><\/em><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Stakeholders link ????<\/em><br><em>LymphQOL<\/em><br><em>Self efficacy questionnaire<\/em><br><em>Camp film<\/em><br><em>Other video<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Other resources<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Films <a href=\"https:\/\/www.lympho.org\/films\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a> https:\/\/www.lympho.org\/films <br>Living with Lymph\u0153dema<br>Finding the right diagnosis<br>What investigations?<br>Finding the right treatment<br>What are Certified Lymph\u0153dema Therapists?<br>Independence for your child\/young person<br>Support groups and organisations<br>Social media<br>Setting up a camp<br>Newsletter &#8211; LYMPH4PARENTS<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em><strong>Each of the above and many more requires content<\/strong><\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>How can we monitor whether treatment is working?<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This is the page for parents&#8217; and carers&#8217; FAQs Causes, Diagnosis &amp; Progression Guide for answers SKIN AND NAIL CARE, INFECTION &amp; COMPLICATIONS Guide for answers Treatment&nbsp; Guide for answers SELF-MANAGEMENT AND INDEPENDENCE Guide for answers LIVING WITH LYMPHEDEMA : SCHOOL, HOLIDAYS ,SPORTS &amp; NUTRITION EMOTIONAL, SOCIAL &amp; PSYCHOLOGICAL WELL-BEING Guide for answers Stakeholders link [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":228,"menu_order":1,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-224","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/224","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=224"}],"version-history":[{"count":14,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/224\/revisions"}],"predecessor-version":[{"id":1576,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/224\/revisions\/1576"}],"up":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/228"}],"wp:attachment":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=224"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}