{"id":771,"date":"2024-05-09T02:44:02","date_gmt":"2024-05-09T02:44:02","guid":{"rendered":"https:\/\/ilf.cricp.org.uk\/?page_id=771"},"modified":"2026-06-29T12:34:27","modified_gmt":"2026-06-29T12:34:27","slug":"about-lymphoedema","status":"publish","type":"page","link":"https:\/\/ilf.cricp.org.uk\/?page_id=771","title":{"rendered":"About lymphoedema"},"content":{"rendered":"\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"430\" height=\"817\" src=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-3.png\" alt=\"\" class=\"wp-image-1528\" style=\"width:840px;height:auto\" srcset=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-3.png 430w, https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-3-158x300.png 158w\" sizes=\"auto, (max-width: 430px) 100vw, 430px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile is-vertically-aligned-top\" style=\"grid-template-columns:20% auto\"><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=773\"><img loading=\"lazy\" decoding=\"async\" width=\"122\" height=\"174\" src=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-5.png\" alt=\"\" class=\"wp-image-1532 size-full\"\/><\/a><\/figure><div class=\"wp-block-media-text__content\">\n<p class=\"has-text-align-center alignfull wp-block-paragraph\"><mark style=\"background-color:#a4f2f299\" class=\"has-inline-color has-blue-color\"><strong>Causes and diagnosis<\/strong><\/mark><\/p>\n<\/div><\/div>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>About<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1055\">7* Campo Ludico educativo per bambini<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1057\">Lymph\u0153dema: Children's Camp - Montpellier 2012<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1061\">Kids speaking about horses<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1063\">What do you need to know?<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1047\">Att leva med lymf\u00f6dem<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1014\">Auto-bandage de la jambe<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1059\">Born differently - the teen with the swollen body<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1249\">Caveat!<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1051\">Children and lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1037\">Compression in P\u00e6diatric and Primary Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1017\">Genetic Testing for primary lymph\u0153dema - a mother's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1045\">Genetics and Primary Lymph\u0153dema: Q&amp;A<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1065\">Getting the Treatment Right<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1221\">It's Not Bad<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1039\">Klippel-Trenaunay syndrome<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1071\">Lymphatic Malformations \u2013 part 1<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1069\">Lymphatic Malformations - part 2<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1030\">Lymph\u0153dema - a child's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=622\">Lymphobook<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1041\">Lymph\u0153dema - a teenager's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1073\">Mechanisms of Primary Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=999\">Mon lymph\u0153d\u00e8me primaires en quelque mots<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1035\">P\u00e6diatric and Primary Lymph\u0153dema - an overview<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1211\">Super Nan and the Secret Support Network<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1202\">The Big Book of Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=514\">The first question is<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1067\">The Genetic Basis of Primary Lymph\u0153dema in Humans<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1006\">Le syst\u00e8me lymphatique et le lymph\u0153d\u00e8me primaires<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1003\">Auto-bandage des orteils<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=518\">The second question is<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=643\">What is lymphoedema? A deep dive...<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">This page should mirror seven areas of the Mappa Lymphoe either with or without the lists of items between the headings. SM wonders whether it may be too slow to load with all of the lists. In any event the lists do not appear where I would like them to appear. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=773\" target=\"_blank\" rel=\"noreferrer noopener\">Causes and Diagnosis<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Diagnosis<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1017\">Genetic Testing for primary lymph\u0153dema - a mother's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1065\">Getting the Treatment Right<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1039\">Klippel-Trenaunay syndrome<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1069\">Lymphatic Malformations - part 2<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=1484\" target=\"_blank\" rel=\"noreferrer noopener\">Prevention and skin-care<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Skincare<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=633\">I nostri bendaggi (in Italian)<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1409\">Italian Camp 2026<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=775\" target=\"_blank\" rel=\"noreferrer noopener\">Treatment options<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Treatment<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1014\">Auto-bandage de la jambe<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=989\">Colorez vos bandages<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1037\">Compression in P\u00e6diatric and Primary Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1065\">Getting the Treatment Right<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=633\">I nostri bendaggi (in Italian)<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1409\">Italian Camp 2026<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1003\">Auto-bandage des orteils<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=1484\" target=\"_blank\" rel=\"noreferrer noopener\">Self-management and independence<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Management<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1245\">Ambassadors<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1014\">Auto-bandage de la jambe<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=989\">Colorez vos bandages<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1037\">Compression in P\u00e6diatric and Primary Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1065\">Getting the Treatment Right<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=633\">I nostri bendaggi (in Italian)<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1409\">Italian Camp 2026<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1003\">Auto-bandage des orteils<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=777\" target=\"_blank\" rel=\"noreferrer noopener\">Living with lymphoedema<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Living well<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1055\">7* Campo Ludico educativo per bambini<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1577\">A Child's View<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1047\">Att leva med lymf\u00f6dem<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1049\">ILF International Children's Camp, Turin, Italy 2017<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1053\">Lymph\u0153dema Children's Camp 2020 - Lymphido<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1030\">Lymph\u0153dema - a child's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1041\">Lymph\u0153dema - a teenager's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=999\">Mon lymph\u0153d\u00e8me primaires en quelque mots<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=1480\" target=\"_blank\" rel=\"noreferrer noopener\">Research and future care<\/a><\/p>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Research<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1257\">French Camp - postfix<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1434\">2026 13th ILF Conference<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Frequently asked questions awaiting replies:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>What measures can I take to help prevent infections for my child? <\/li>\n\n\n\n<li>What measures can I take to help prevent infections for the child? <\/li>\n\n\n\n<li>How do I recognise cellulitis? <\/li>\n\n\n\n<li>What is cellulitis and how do I recognise it? <\/li>\n\n\n\n<li>Questions on made to measure\/orthop\u00e6dic shoes\u2026how and where to get them (application process) Are there any support groups for parents of children with lymphoedema? <\/li>\n\n\n\n<li>Are there any support groups for children with lymphoedema? Online\/locally? <\/li>\n\n\n\n<li>As our first child has lymphoedema, how likely is it that any other children we have will also have the condition? <\/li>\n\n\n\n<li>We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema? <\/li>\n\n\n\n<li>Putting the stockings on my child is difficult. Is there any practical help for this? <\/li>\n\n\n\n<li>Are there any tips or devices to aid putting on and take off the compression garments? <\/li>\n\n\n\n<li>How can we get supplies of hosiery when our child needs it? <\/li>\n\n\n\n<li>Where can my child get a diagnosis? (locally\/nationally) <\/li>\n\n\n\n<li>Is there any news in the study of the genetic component of the disease? <\/li>\n\n\n\n<li>Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis? <\/li>\n\n\n\n<li>Why is lymphoedema not well known and why are there so few doctors who knows about it? <\/li>\n\n\n\n<li>Are there websites that could tell our child more about lymphoedema? <\/li>\n\n\n\n<li>What resources are available to learn more about lymphoedema? <\/li>\n\n\n\n<li>Are there many children with lymphoedema? <\/li>\n\n\n\n<li>How many children have lymphoedema in the world? <\/li>\n\n\n\n<li>Can we pay for extra hosiery if our child needs it? <\/li>\n\n\n\n<li>What research is being done on lymphedema?<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Causes and diagnosis This page should mirror seven areas of the Mappa Lymphoe either with or without the lists of items between the headings. SM wonders whether it may be too slow to load with all of the lists. In any event the lists do not appear where I would like them to appear. Causes [&hellip;]<\/p>\n","protected":false},"author":21,"featured_media":0,"parent":654,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-771","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/771","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/users\/21"}],"replies":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=771"}],"version-history":[{"count":11,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/771\/revisions"}],"predecessor-version":[{"id":1534,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/771\/revisions\/1534"}],"up":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/654"}],"wp:attachment":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=771"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}