{"id":773,"date":"2024-05-09T02:47:28","date_gmt":"2024-05-09T02:47:28","guid":{"rendered":"https:\/\/ilf.cricp.org.uk\/?page_id=773"},"modified":"2026-06-29T13:34:30","modified_gmt":"2026-06-29T13:34:30","slug":"diagnosis","status":"publish","type":"page","link":"https:\/\/ilf.cricp.org.uk\/?page_id=773","title":{"rendered":"Causes and Diagnosis"},"content":{"rendered":"\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"544\" height=\"707\" src=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-1.png\" alt=\"\" class=\"wp-image-1518\" style=\"width:840px;height:auto\" srcset=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-1.png 544w, https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-1-231x300.png 231w\" sizes=\"auto, (max-width: 544px) 100vw, 544px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>1.Causes and Diagnosis (Discovery Bay) :<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">Can lymphedema be cured definitively?<\/mark><\/li>\n\n\n\n<li><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-red-color\">How can we ensure a smooth transition to adult lymphedema care later in life?<\/mark><\/li>\n\n\n\n<li>What is lymphedema?<\/li>\n\n\n\n<li>What could have caused my child&#8217;s lymphedema?<\/li>\n\n\n\n<li>Is lymphedema genetic?<\/li>\n\n\n\n<li>How is lymphedema diagnosed?<\/li>\n\n\n\n<li>Where can we find specialist lymphedema care?<\/li>\n\n\n\n<li>Can lymphedema be prevented?<\/li>\n\n\n\n<li>Can lymphedema be prevented from progressing?<\/li>\n\n\n\n<li>What triggers lymphedema to worsen?<\/li>\n\n\n\n<li>Are there many children with lymphoedema?<\/li>\n\n\n\n<li>What changes should we expect as our child grows?<\/li>\n\n\n\n<li>Can lymphedema spread to other parts of the body?<\/li>\n\n\n\n<li>How will lymphedema affect my child\u2019s growth and development?<\/li>\n\n\n\n<li>What is the long-term outlook for my child?<\/li>\n\n\n\n<li>Could lymphedema affect my child\u2019s mobility?<\/li>\n<\/ol>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile is-vertically-aligned-top\" style=\"grid-template-columns:20% auto\"><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/ilf.cricp.org.uk\/?page_id=1484\"><img loading=\"lazy\" decoding=\"async\" width=\"122\" height=\"174\" src=\"https:\/\/ilf.cricp.org.uk\/wp-content\/uploads\/2026\/06\/image-5.png\" alt=\"\" class=\"wp-image-1532 size-full\"\/><\/a><\/figure><div class=\"wp-block-media-text__content\">\n<p class=\"has-text-align-center alignfull wp-block-paragraph\"><mark style=\"background-color:#a4f2f299\" class=\"has-inline-color has-blue-color\"><strong>Prevention and skin care<\/strong><\/mark><\/p>\n<\/div><\/div>\n\n\n<div class=\"wp-block-paragraph\"><div class=\"category section\"><h4>Diagnosis<\/h4><ul><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=608\">Care of Children with Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1017\">Genetic Testing for primary lymph\u0153dema - a mother's perspective<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1065\">Getting the Treatment Right<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1043\">Infections and Lymph\u0153dema<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1039\">Klippel-Trenaunay syndrome<\/a><\/li><li><a href=\"https:\/\/ilf.cricp.org.uk\/?p=1069\">Lymphatic Malformations - part 2<\/a><\/li><\/ul><\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Frequently asked questions awaiting replies:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>What kind of exams are necessary to diagnose lymphedema? <\/li>\n\n\n\n<li>How do I recognise cellulitis? <\/li>\n\n\n\n<li>What is cellulitis and how do I recognise it? <\/li>\n\n\n\n<li>What kind of treatment is available for my child? <\/li>\n\n\n\n<li>What are the different type of treatments available for lymphoedema? <\/li>\n\n\n\n<li>When lymphoedema does not respond properly to treatments (e.g. bandaging) what can be done? Change technique? <\/li>\n\n\n\n<li>What can I do if the oedema does not respond to the treatment? <\/li>\n\n\n\n<li>Management of genital lymphedema Surgery for children \u2013 what age is appropriate (is there a too young stage?) What kind or surgical options are available and at what age is it appropriate? <\/li>\n\n\n\n<li>As our first child has lymphoedema, how likely is it that any other children we have will also have the condition? <\/li>\n\n\n\n<li>We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema? <\/li>\n\n\n\n<li>Where can my child get a diagnosis? (locally\/nationally) <\/li>\n\n\n\n<li>What specialist should I see for a diagnosis of my child? <\/li>\n\n\n\n<li>What specialist should I see for treatment of my child? <\/li>\n\n\n\n<li>What are the different specialists that can diagnose and treat a child with lymphoedema? <\/li>\n\n\n\n<li>How can swelling in the pelvic floor and on the hip be kept down? and hips? <\/li>\n\n\n\n<li>I understand that lymphoscintigraphy may help us understand the cause of my child\u2019s lymphoedema but will it help in what treatment he will receive? <\/li>\n\n\n\n<li>Risk of developing genital oedema What are the risks of developing genital oedema and what specialist can help? <\/li>\n\n\n\n<li>Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis? <\/li>\n\n\n\n<li>Why is lymphoedema not well known and why are there so few doctors who knows about it? <\/li>\n\n\n\n<li>At what age can the child have a lymphoscintigraphy? <\/li>\n\n\n\n<li>Since I have not found a genetic match, what tests could be performed to understand the nature of my lymphatic dysfunction? <\/li>\n\n\n\n<li>And assuming we can understand it, how much more effectively \u2013 compared to the usual and generic lymphoedema management practices \u2013 could the oedema be treated? <\/li>\n\n\n\n<li>Should I\/my child get\/can I get a genetic test for my child\/me? <\/li>\n\n\n\n<li>What is the purpose of a genetic test?<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>1.Causes and Diagnosis (Discovery Bay) : Prevention and skin care Frequently asked questions awaiting replies:<\/p>\n","protected":false},"author":21,"featured_media":0,"parent":654,"menu_order":1,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-773","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/773","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/users\/21"}],"replies":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=773"}],"version-history":[{"count":8,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/773\/revisions"}],"predecessor-version":[{"id":1567,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/773\/revisions\/1567"}],"up":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/654"}],"wp:attachment":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=773"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}