Frequently asked questions awaiting replies:<\/p>\n\n\n\n

\n
• What measures can I take to help prevent infections for my child? <\/li>\n\n\n\n
• What measures can I take to help prevent infections for the child? <\/li>\n\n\n\n
• How do I know if the compression is hurting my child versus when it is doing its job? <\/li>\n\n\n\n
• What are compression garments for? <\/li>\n\n\n\n
• Is athletes foot a common problem for those with lymphedema and how can we treat them? <\/li>\n\n\n\n
• What is bandages for? <\/li>\n\n\n\n
• How do I know if the compression garments\/bandages hurts or is distressing for the child? <\/li>\n\n\n\n
• What is manual lymphatic drainage (MLD)? <\/li>\n\n\n\n
• And can I learn how to do it? <\/li>\n\n\n\n
• Do the child always need to wear the compression? <\/li>\n\n\n\n
• When can they go without? <\/li>\n\n\n\n
• How do I recognise cellulitis? <\/li>\n\n\n\n
• What is cellulitis and how do I recognise it? <\/li>\n\n\n\n
• How can I access treatment for my child\u2019s recurrent verrucas? <\/li>\n\n\n\n
• Are verrucas a common problem for those with lymphoedema and how can we treat them? <\/li>\n\n\n\n
• What kind of treatment is available for my child? <\/li>\n\n\n\n
• What are the different type of treatments available for lymphoedema? <\/li>\n\n\n\n
• What exercise can my child do\/is there some exercise that can make it worse\/better? <\/li>\n\n\n\n
• What physical activities are recommended for a child with lymphoedema? <\/li>\n\n\n\n
• When lymphoedema does not respond properly to treatments (e.g. bandaging) what can be done? Change technique? <\/li>\n\n\n\n
• What can I do if the oedema does not respond to the treatment? <\/li>\n\n\n\n
• Is there any drug to help lymphoedema? <\/li>\n\n\n\n
• Are there any pharmaceutical treatments for lymphoedema? <\/li>\n\n\n\n
• Questions on made to measure\/orthop\u00e6dic shoes\u2026how and where to get them (application process) <\/li>\n\n\n\n
• Are there any support groups for parents of children with lymphoedema? <\/li>\n\n\n\n
• Are there any support groups for children with lymphoedema? Online\/locally? <\/li>\n\n\n\n
• Surgery for children \u2013 what age is appropriate (is there a too young stage?) <\/li>\n\n\n\n
• What kind or surgical options are available and at what age is it appropriate? <\/li>\n\n\n\n
• As our first child has lymphoedema, how likely is it that any other children we have will also have the condition? <\/li>\n\n\n\n
• We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema? <\/li>\n\n\n\n
• Will my child have to wear bandages\/hosiery for Putting the stockings on my child is difficult. Is there any practical help for this? <\/li>\n\n\n\n
• Are there any tips or devices to aid putting on and take off the compression garments? <\/li>\n\n\n\n
• How can we get supplies of hosiery when our child needs it? <\/li>\n\n\n\n
• How can we ensure schools understand our child\u2019s condition? <\/li>\n\n\n\n
• What specialist should I see for treatment of my child? <\/li>\n\n\n\n
• What are the different specialists that can diagnose and treat a child with lymphoedema? <\/li>\n\n\n\n
• My child does not always want to wear their compression garments, is it ok to have \u201cdays off\u201d? <\/li>\n\n\n\n
• My child does not always want to wear their compression garments, is it ok to have \u201cdays off\u201d? <\/li>\n\n\n\n
• When is it time for my child (at what age) to be involved in their own care? <\/li>\n\n\n\n
• Take on compression garments by themselves\u2026.skin care etc. At what age can the child begin to take on some of the self-care activities such as skin care? <\/li>\n\n\n\n
• Mental health support available (where\/what) <\/li>\n\n\n\n
• What kind of mental health support is available and how will I know when the child needs it? <\/li>\n\n\n\n
• How can swelling in the pelvic floor and on the hip be kept down? and hips? <\/li>\n\n\n\n
• Are there any examinations that can help with identifying and\/or improving treatment? <\/li>\n\n\n\n
• How can I deal with other peoples opinion and \u201cgood advice\u201d about my child\u2019s lymphoedema <\/li>\n\n\n\n
• How can I manage with other peoples opinion and \u201cgood advice\u201d about my child\u2019s lymphoedema <\/li>\n\n\n\n
• From how old can I start to bandage my child? <\/li>\n\n\n\n
• From how old can I start to bandage my child and how will I know that it needs to be bandaged? <\/li>\n\n\n\n
• How often should elastic stockings be replaced\/changed? <\/li>\n\n\n\n
• How many garments does the child need and how often do they need to be changed? <\/li>\n\n\n\n
• Given the natural reticence of young people to treat themselves methodically, what treatment\/aid is most appropriate to be intransigent with them? <\/li>\n\n\n\n
• How can we motivate a teenager to be more involved in their treatment? <\/li>\n\n\n\n
• Risk of developing genital oedema What are the risks of developing genital oedema and what specialist can help? <\/li>\n\n\n\n
• Is there any news in the study of the genetic component of the disease? <\/li>\n\n\n\n
• Why are specialist services so far from our local area? <\/li>\n\n\n\n
• What is a specialist centre and where can I find it in my country? <\/li>\n\n\n\n
• Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis? <\/li>\n\n\n\n
• Why is lymphoedema not well known and why are there so few doctors who knows about it? How do you deal with itching caused by bandages \u2013 it is distressing to the child? <\/li>\n\n\n\n
• How can I manage itching skin from the compression bandages or garments? <\/li>\n\n\n\n
• Why are children not offered preventative MLD? <\/li>\n\n\n\n
• Are there websites that could tell our child more about lymphoedema? <\/li>\n\n\n\n
• What resources are available to learn more about lymphoedema? <\/li>\n\n\n\n
• Are there any easy and effective self-lymphatic drainage techniques that can be performed for good lymphoedema management? <\/li>\n\n\n\n
• How to manage elastic stockings in children going to school who are not autonomous to manage it on their own? <\/li>\n\n\n\n
• How can compression stockings be managed in nursery? <\/li>\n\n\n\n
• Can the child learn to perform MLD? <\/li>\n\n\n\n
• Who can teach me to learn to bandage my child? <\/li>\n\n\n\n
• Can we get funding for MLD? <\/li>\n\n\n\n
• Can we get reimbursement for manual lymphatic drainage? <\/li>\n\n\n\n
• Since I have not found a genetic match, what tests could be performed to understand the nature of my lymphatic dysfunction? <\/li>\n\n\n\n
• And assuming we can understand it, how much more effectively \u2013 compared to the usual and generic lymphoedema management practices \u2013 could the oedema be treated? <\/li>\n\n\n\n
• Can we pay for extra hosiery if our child needs it? <\/li>\n\n\n\n
• What is ascite and how is it treated? <\/li>\n\n\n\n
• Treatment of the pelvic floor and hips <\/li>\n\n\n\n
• Treatment of toes <\/li>\n\n\n\n
• Treatment of fingers <\/li>\n\n\n\n
• Treatment of hands <\/li>\n\n\n\n
• Treatment of genital edema <\/li>\n\n\n\n
• Treatment of trunkal edema <\/li>\n\n\n\n
• Compression of hands on smaller children, how is it done and how to \u201cmove with the growth\u201d of the child? <\/li>\n\n\n\n
• How should compression garments be washed and maintained?<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"

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