Frequently asked questions awaiting replies:<\/p>\n\n\n\n

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• What measures can I take to help prevent infections for my child? <\/li>\n\n\n\n
• What measures can I take to help prevent infections for the child? <\/li>\n\n\n\n
• What is MCT (medium-chain triglycerides) diet and how does it work? <\/li>\n\n\n\n
• Can we get reimbursement for compression garments? <\/li>\n\n\n\n
• What kind of treatment is available for my child? <\/li>\n\n\n\n
• What are the different type of treatments available for lymphoedema? <\/li>\n\n\n\n
• What exercise can my child do\/is there some exercise that can make it worse\/better? <\/li>\n\n\n\n
• What physical activities are recommended for a child with lymphoedema? <\/li>\n\n\n\n
• Questions on made to measure\/orthop\u00e6dic shoes\u2026how and where to get them (application process) <\/li>\n\n\n\n
• Management of genital lymphedema <\/li>\n\n\n\n
• Are there any support groups for parents of children with lymphoedema? <\/li>\n\n\n\n
• Are there any support groups for children with lymphoedema? Online\/locally? <\/li>\n\n\n\n
• Surgery for children \u2013 what age is appropriate (is there a too young stage?) <\/li>\n\n\n\n
• What kind or surgical options are available and at what age is it appropriate? <\/li>\n\n\n\n
• How can we get supplies of hosiery when our child needs it? <\/li>\n\n\n\n
• Where can I buy clothes that will fit my child and that are age-appropriate? <\/li>\n\n\n\n
• How can we ensure schools understand our child\u2019s condition? <\/li>\n\n\n\n
• How can we help our child who is being bullied at school because of the hosiery\/shoes that he wears? <\/li>\n\n\n\n
• My child does not always want to wear their compression garments, is it ok to have \u201cdays off\u201d? <\/li>\n\n\n\n
• My child does not always want to wear their compression garments, is it ok to have \u201cdays off\u201d? <\/li>\n\n\n\n
• When is it time for my child (at what age) to be involved in their own care? Take on compression garments by themselves\u2026.skin care etc. <\/li>\n\n\n\n
• At what age can the child begin to take on some of the self-care activities such as skin care? <\/li>\n\n\n\n
• Mental health support available (where\/what) <\/li>\n\n\n\n
• What kind of mental health support is available and how will I know when the child needs it? <\/li>\n\n\n\n
• How can I deal with other peoples opinion and \u201cgood advice\u201d about my child\u2019s lymphoedema <\/li>\n\n\n\n
• How can I manage with other peoples opinion and \u201cgood advice\u201d about my child\u2019s lymphoedema <\/li>\n\n\n\n
• How often should elastic stockings be replaced\/changed? <\/li>\n\n\n\n
• How many garments does the child need and how often do they need to be changed? <\/li>\n\n\n\n
• Given the natural reticence of young people to treat themselves methodically, what treatment\/aid is most appropriate to be intransigent with them? <\/li>\n\n\n\n
• How can we motivate a teenager to be more involved in their treatment? <\/li>\n\n\n\n
• Can the shoes provided by the hospital be more fashionable? <\/li>\n\n\n\n
• Why are specialist services so far from our local area? <\/li>\n\n\n\n
• What is a specialist centre and where can I find it in my country? <\/li>\n\n\n\n
• What kind of food is better or worse for the lymphedema? (especially for those with need of MCT diet this is an issue as there is not much information on a practical level) <\/li>\n\n\n\n
• Are there any diets suitable for those with lymphoedema, and are there food groups more or less beneficial or harmful? <\/li>\n\n\n\n
• Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis? <\/li>\n\n\n\n
• Why is lymphoedema not well known and why are there so few doctors who knows about it? <\/li>\n\n\n\n
• Our daughter is unable to buy shoes in the High Street so they are made at the hospital. Can she have more than one pair at a time? <\/li>\n\n\n\n
• Why are children not offered preventative MLD? <\/li>\n\n\n\n
• Are there any foods\/drinks that should absolutely be avoided? <\/li>\n\n\n\n
• How to manage elastic stockings in children going to school who are not autonomous to manage it on their own? <\/li>\n\n\n\n
• How can compression stockings be managed in nursery? <\/li>\n\n\n\n
• Can we get reimbursement for made to measure shoes? <\/li>\n\n\n\n
• How can we work with the nursery\/school to identify problems with the compression garments? <\/li>\n\n\n\n
• How can we work with the school\/nursery to make them understand lymphedema and reduce the risk of bullying? <\/li>\n\n\n\n
• Can we get funding for MLD? <\/li>\n\n\n\n
• Can we get reimbursement for manual lymphatic drainage? <\/li>\n\n\n\n
• Can we pay for extra hosiery if our child needs it? <\/li>\n\n\n\n
• Should I\/my child get\/can I get a genetic test for my child\/me? <\/li>\n\n\n\n
• What is the purpose of a genetic test? <\/li>\n\n\n\n
• What brands or shops\/online stores sell shoes\/clothes that is accommodating for lymphedema?<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"

  Frequently asked questions awaiting replies:<\/p>\n","protected":false},"author":21,"featured_media":0,"parent":654,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-777","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/users\/21"}],"replies":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=777"}],"version-history":[{"count":4,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/777\/revisions"}],"predecessor-version":[{"id":958,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/777\/revisions\/958"}],"up":[{"embeddable":true,"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=\/wp\/v2\/pages\/654"}],"wp:attachment":[{"href":"https:\/\/ilf.cricp.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}