Written by Jamie Gaddis Stephens (Author), Jessica Gaddis English (Editor) It’s Not Bad dives into what is called, lymphœdema. Primary lymphœdema affects children all around the world but it is a rare condition. This story is geared towards children who struggle with understanding their disease.
Available from the Jo Rising Foundation
What happens when children see your lymphœdema for the first time? How do you deal with it? How do they deal with it?
Michelle Freke’s book explores these questions in a child friendly, super-hero type way.
Stora boken om lymfödem är speciellt riktad till barn. Den förklarar på ett lättförståeligt sätt vad lymfödem är och hur det kan behandlas. – SÖF
Författare är Dr Jacquelyne Todd 
ISBN 978-91-637-2163-2
The award-winning children’s book The Big Book of Lymphoedema aims to help children and families understand the condition by presenting useful information in a colourful, eye-catching and child-friendly format. Originally launched in April 2010, the book was written by Dr Jacquelyne Todd, who was a physiotherapist consultant in lymphoedema at The Leeds Teaching Hospitals NHS Trust, before she retired in 2013. A new edition with subtle updates is available from the LSN.
Published by BLS on its YouTube channel:
The British Lymphology Society exists to preserve and protect good health of people living with lymphoedema / chronic oedema. Lymphoedema occurs when the lymphatic drainage system fails; chronic oedema is indicative of failure of lymphatic drainage. Both of these terms are used interchangeably to emphasise the need to manage both the initial cause of the chronic oedema and the lymphatic failure concurrently.
thebls.com
Courtesy of our resident physio, Élodie:
A deep dive into the plumbing of your body. We hope to provide alternative language versions, but if you are a tech-whizz, or know one, you may be able to persuade your smart phone to provide a simultaneous translation for yourself. If you do share how you did it with your friends here in the comments.
This video is included in Élodie’s Lymphobook – do have a closer look.
For more information follow this link…(to a location which does not yet exist but shall when someone provides the document)
Élodie our exotic, knowledgeable and wonderful Fisioterapista has written an exciting new book:
Open the book in its own page:
Le tue bende sono come vecchi calzini, finiscono sempre alle caviglie? Come li affronti?
Leggi le tue storie qui:
Are your bandages like old socks, they always end up at your ankles? How do you cope with them?
Read your stories here:
We have been asked to say a little more about the forthcoming camp in Languedoc. News comes out slowly, but we shall add to it here. For our first educational video, please watch the stories of nine of our young people:
Did you read about South Africa, Switzerland, the Netherlands or India today? You can find more information about all the ILF national frameworks and learn more about the ILF here
So today’s question is:
What is the main cause of lymphœdema worldwide?
Answers please in the comments box below. If you wish to remain anonymous please say so otherwise we shall publish, subject to editorial discretion, what you have to say.
