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Monthly Archives: July 2024

Caveat!

Posted on 2024-07-19 by cricpadmin

Medical Advice Disclaimer
DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE
whilst every effort has been made to ensure that the material on this website is accurate, appropriate, safe and in accordance with good medical practice, it is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment.

Any particular advice provided or recommendation made may not be suitable for your specific circumstances. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime and never disregard professional medical advice or delay in seeking it because of something you have read on this website or any other website.

Reliance on any information provided on this website, by our employees and others appearing on the website is solely at your own risk.

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Posted in About, Uncategorized | Leave a comment |

Ambassadors

Posted on 2024-07-19 by cricpadmin

At the recent camp held in June 2024 near Montpellier we appointed three young people as ambassadors for the exchange of ideas and information, and promotion of good practice amongst young people.

These three and some others will communicate in a WhatsApp Group. If you would like to join the group, please let us know. Parents too are invited to join their own WhatsApp group. We may have groups available in different languages. Please contact us if you would like more information.

Posted in Stories, Support | Leave a comment |

French Camp – postfix

Posted on 2024-07-15 by cricpadmin
https://www.linkedin.com/posts/centre-de-r%C3%A9f%C3%A9rence-lymph%C5%93d%C3%A8mes-primaires_lymphagbdaeyme-activity-7217569451439747072-In5U?utm_source=share&utm_medium=member_desktop

Reported on LinkedIn

CLAP DE FIN de l’international children camp 2024 !

170 personnes venues de 11 pays différents se sont retrouvés pendant 4 jours autour d’une même cause : le lymphœdème. Pour que les enfants touchés et les familles ne soient plus seules, pour que le lymphœdème soit mieux connu, mieux reconnu, pour que la recherche avance.

👏 aux 28 familles venues d’Allemagne, d’Espagne, de France, d’Italie, d’Irlande et de Suisse qui nous ont rejoint en Ardèche. Merci pour leur confiance ❤️

👏 aux 39 professionnels et aux 16 bénévoles venus d’Angleterre, de Belgique, d’Espagne, des Etats-Unis, de France, d’Italie, d’Irlande, de Pologne et du Portugal.

👏 aux organisateurs, le Centre de Référence de Montpellier et le CMID Italie, et ses partenaires le PFL, l’AVML, Lymphido, l’Italf et l’ILF. Merci aux donateurs et aux mécènes.

👏 à Isabelle Quéré et à Elodie Stasi pour permettre à ces camps internationaux d’exister et pour tout leur travail auprès des enfants et des familles.

————————————–

A l’approche des JO, tous nos athlètes du camp international ont déjà gagné.

🏅équipe du CHU de Montpellier : Isabelle Quéré, Sandrine MESTRE GODIN, Emilie Valdelievre, Maria de los Santos DONOSO IZQUIERDO, Patricia Maquez Cardenas, Géraldine Davidou, Sandrine Roussillon, Agnès Blanc, Cédric Robert, Anaïs FORESTIER, Stéphanie Badouaille, Fabienne Mourgues, Hélène Pourquier et les organisatrices Domitille Ferron et Morgane Denis

🏅équipe italienne : Elodie Stasi, Lorena Acquadro, Fabio Romaldini, Daniela Vaglio, Sara Balducci, Alessandra Gazzotti

🏅équipe anglaise : Christine Moffatt, Susan Noerregaard, Chris Norregaard

🏅équipe irlandaise : Meadbh Mac Sweeney, Norah Kyne

🏅équipe espagnole : sonia ehrenberg, Obdulia Moya, ISABEL FORNER CORDERO, Eulalia Torres

🏅équipe belge : Jean-Paul Belgrado, Véronique Fuchs, Kevin Dusart, Cindy Santos de Matos

🏅équipe de l’hôpital Cognacq-Jay : Caroline Fourgeaud, Patricia Traineau

🏅bénévoles du PFL et de l’AVML : Jean-Pierre Bécus, Marlène Coupé, Samantha Pierret, Laurence Toulet-Delaporte, Olivier Kkoweb, Audrey Baille Peyruchaud, Christine Ferrotti, Guy Doladille

🏅les autres bénévoles : Emmanuel Pajanipadeatchy, Pierre Gonon,
peron anthony, CHRISTEL JOST, Jerome Monin, Antony Luce, Mathéo Roussillon

🏅le dessinateur Maxime Masgrau et le photographe Romain Guédé

🏅les guests internationaux : Manuela Lourenço Marques, Andrzej Szuba, Stanley Rockson

————————————–

Centre de référence Lymphoedèmes primaires / Partenariat Français du Lymphoedème / AVML / ILF • International Lymphoedema Framework / CHU de Montpellier / Fonds Guilhem – CHU de Montpellier / Filière FAVA-Multi / VASCERN, European Reference Network on Rare Multisystemic Vascular Diseases / Société Française de Lymphologie / Société Française de Médecine Vasculaire

Posted in Activities, French | Leave a comment |
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