About lymphoedema
Causes and diagnosis
About
- 7* Campo Ludico educativo per bambini
- Lymphœdema: Children's Camp - Montpellier 2012
- Kids speaking about horses
- What do you need to know?
- Att leva med lymfödem
- Auto-bandage de la jambe
- Born differently - the teen with the swollen body
- Care of Children with Lymphœdema
- Caveat!
- Children and lymphœdema
- Compression in Pædiatric and Primary Lymphœdema
- Genetic Testing for primary lymphœdema - a mother's perspective
- Genetics and Primary Lymphœdema: Q&A
- Getting the Treatment Right
- Infections and Lymphœdema
- It's Not Bad
- Klippel-Trenaunay syndrome
- Lymphatic Malformations – part 1
- Lymphatic Malformations - part 2
- Lymphœdema - a child's perspective
- Lymphobook
- Lymphœdema - a teenager's perspective
- Mechanisms of Primary Lymphœdema
- Mon lymphœdème primaires en quelque mots
- Pædiatric and Primary Lymphœdema - an overview
- Super Nan and the Secret Support Network
- The Big Book of Lymphœdema
- The first question is
- The Genetic Basis of Primary Lymphœdema in Humans
- Le système lymphatique et le lymphœdème primaires
- Auto-bandage des orteils
- The second question is
- What is lymphoedema? A deep dive...
This page should mirror seven areas of the Mappa Lymphoe either with or without the lists of items between the headings. SM wonders whether it may be too slow to load with all of the lists. In any event the lists do not appear where I would like them to appear.
Self-management and independence
Living well
- 7* Campo Ludico educativo per bambini
- A Child's View
- Att leva med lymfödem
- Care of Children with Lymphœdema
- ILF International Children's Camp, Turin, Italy 2017
- Lymphœdema Children's Camp 2020 - Lymphido
- Lymphœdema - a child's perspective
- Lymphœdema - a teenager's perspective
- Mon lymphœdème primaires en quelque mots
Frequently asked questions awaiting replies:
- What measures can I take to help prevent infections for my child?
- What measures can I take to help prevent infections for the child?
- How do I recognise cellulitis?
- What is cellulitis and how do I recognise it?
- Questions on made to measure/orthopædic shoes…how and where to get them (application process) Are there any support groups for parents of children with lymphoedema?
- Are there any support groups for children with lymphoedema? Online/locally?
- As our first child has lymphoedema, how likely is it that any other children we have will also have the condition?
- We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema?
- Putting the stockings on my child is difficult. Is there any practical help for this?
- Are there any tips or devices to aid putting on and take off the compression garments?
- How can we get supplies of hosiery when our child needs it?
- Where can my child get a diagnosis? (locally/nationally)
- Is there any news in the study of the genetic component of the disease?
- Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis?
- Why is lymphoedema not well known and why are there so few doctors who knows about it?
- Are there websites that could tell our child more about lymphoedema?
- What resources are available to learn more about lymphoedema?
- Are there many children with lymphoedema?
- How many children have lymphoedema in the world?
- Can we pay for extra hosiery if our child needs it?
- What research is being done on lymphedema?