QOL
The ILF have two studies seeking to understand factors which underly quality of life measures of individuals affected by lymphœdema. The two academic studies have closed but the questionnaires are still available, and may be completed by you.
We hope to develop a tool which will show where you your responses lie against those from other respondents. The parameters which we should use for that comparison have not yet been well identified. It may be a while before meaningful comparisons can be made.
You may find it helpful to you nevertheless to complete one of the surveys, which may be found here:
- Lymqol – a questionnaire for adults: this is a pdf version of the questionnaire. If you complete this, and it should be possible to do so using Adobe Reader, and you wish us to see it, please do so either on this site or by email to the administrator.
- Lymphoqol – a questionnaire for children and young people. There are two versions of the questionnaire, one for younger children the other for young people up to the age of 21. The survey is available in several languages, not all of which are presently in electronic form. If your language is not available, please contact us, we may have it. If we do not, and you are willing to help us, we may be able to produce a translation together. More information about translation and the availability of the questionnaire for other purposes may be found on the CRICP website here.
The questions will help you to think through aspects of your life and your response to them. You may be able to persuade your medical practitioner or another informed person to help you to do this in a helpful and useful way in your own particular circumstances.
You may leave contact details in the questionnaires, but if you do so {GDPR requires that we only/we are only able to} use them to contact you in connection with future research opportunities. Therefore, if you wish to communicate with us about the completion of the questionnaires, please use the form below, as well as providing details in the questionnaire to authorise us to access the information you have provided. Comments are moderated before publication. If you wish your comment to remain private, please say so, and we shall not publish it on this site.
Lymqol
Lymphoqol
LYMPHOQOL, the Quality of Life Questionnaire
Exploring the quality of life of children and young people with lymphœdema