At the recent camp held in June 2024 near Montpellier we appointed three young people as ambassadors for the exchange of ideas and information, and promotion of good practice amongst young people.
These three and some others will communicate in a WhatsApp Group. If you would like to join the group, please let us know. Parents too are invited to join their own WhatsApp group. We may have groups available in different languages. Please contact us if you would like more information.
Published by BLS on its YouTube channel:
The British Lymphology Society exists to preserve and protect good health of people living with lymphoedema / chronic oedema. Lymphoedema occurs when the lymphatic drainage system fails; chronic oedema is indicative of failure of lymphatic drainage. Both of these terms are used interchangeably to emphasise the need to manage both the initial cause of the chronic oedema and the lymphatic failure concurrently.
thebls.com
Le tue bende sono come vecchi calzini, finiscono sempre alle caviglie? Come li affronti?
Leggi le tue storie qui:
Are your bandages like old socks, they always end up at your ankles? How do you cope with them?
Read your stories here:
Published by VASCERN on their YouTube channel:
VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.
Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr
Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr
Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr
Published by VASCERN on their YouTube channel:
VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.
