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Category Archives: Activities

French Camp – postfix

Posted on 2024-07-15 by cricpadmin
https://www.linkedin.com/posts/centre-de-r%C3%A9f%C3%A9rence-lymph%C5%93d%C3%A8mes-primaires_lymphagbdaeyme-activity-7217569451439747072-In5U?utm_source=share&utm_medium=member_desktop

Reported on LinkedIn

CLAP DE FIN de l’international children camp 2024 !

170 personnes venues de 11 pays différents se sont retrouvés pendant 4 jours autour d’une même cause : le lymphœdème. Pour que les enfants touchés et les familles ne soient plus seules, pour que le lymphœdème soit mieux connu, mieux reconnu, pour que la recherche avance.

👏 aux 28 familles venues d’Allemagne, d’Espagne, de France, d’Italie, d’Irlande et de Suisse qui nous ont rejoint en Ardèche. Merci pour leur confiance ❤️

👏 aux 39 professionnels et aux 16 bénévoles venus d’Angleterre, de Belgique, d’Espagne, des Etats-Unis, de France, d’Italie, d’Irlande, de Pologne et du Portugal.

👏 aux organisateurs, le Centre de Référence de Montpellier et le CMID Italie, et ses partenaires le PFL, l’AVML, Lymphido, l’Italf et l’ILF. Merci aux donateurs et aux mécènes.

👏 à Isabelle Quéré et à Elodie Stasi pour permettre à ces camps internationaux d’exister et pour tout leur travail auprès des enfants et des familles.

————————————–

A l’approche des JO, tous nos athlètes du camp international ont déjà gagné.

🏅équipe du CHU de Montpellier : Isabelle Quéré, Sandrine MESTRE GODIN, Emilie Valdelievre, Maria de los Santos DONOSO IZQUIERDO, Patricia Maquez Cardenas, Géraldine Davidou, Sandrine Roussillon, Agnès Blanc, Cédric Robert, Anaïs FORESTIER, Stéphanie Badouaille, Fabienne Mourgues, Hélène Pourquier et les organisatrices Domitille Ferron et Morgane Denis

🏅équipe italienne : Elodie Stasi, Lorena Acquadro, Fabio Romaldini, Daniela Vaglio, Sara Balducci, Alessandra Gazzotti

🏅équipe anglaise : Christine Moffatt, Susan Noerregaard, Chris Norregaard

🏅équipe irlandaise : Meadbh Mac Sweeney, Norah Kyne

🏅équipe espagnole : sonia ehrenberg, Obdulia Moya, ISABEL FORNER CORDERO, Eulalia Torres

🏅équipe belge : Jean-Paul Belgrado, Véronique Fuchs, Kevin Dusart, Cindy Santos de Matos

🏅équipe de l’hôpital Cognacq-Jay : Caroline Fourgeaud, Patricia Traineau

🏅bénévoles du PFL et de l’AVML : Jean-Pierre Bécus, Marlène Coupé, Samantha Pierret, Laurence Toulet-Delaporte, Olivier Kkoweb, Audrey Baille Peyruchaud, Christine Ferrotti, Guy Doladille

🏅les autres bénévoles : Emmanuel Pajanipadeatchy, Pierre Gonon,
peron anthony, CHRISTEL JOST, Jerome Monin, Antony Luce, Mathéo Roussillon

🏅le dessinateur Maxime Masgrau et le photographe Romain Guédé

🏅les guests internationaux : Manuela Lourenço Marques, Andrzej Szuba, Stanley Rockson

————————————–

Centre de référence Lymphoedèmes primaires / Partenariat Français du Lymphoedème / AVML / ILF • International Lymphoedema Framework / CHU de Montpellier / Fonds Guilhem – CHU de Montpellier / Filière FAVA-Multi / VASCERN, European Reference Network on Rare Multisystemic Vascular Diseases / Société Française de Lymphologie / Société Française de Médecine Vasculaire

Posted in Activities, French | Leave a comment |

Lymphobook

Posted on 2024-02-29 by cricpadmin

Élodie our exotic, knowledgeable and wonderful Fisioterapista has written an exciting new book:

Open the book in its own page:

Lymphobook
Lymphobook
Click to read this book, made with Book Creator
read.bookcreator.com
Posted in About, Activities, Books, Italian | 1 Comment |

I nostri bendaggi (in Italian)

Posted on 2024-02-28 by cricpadmin

Le tue bende sono come vecchi calzini, finiscono sempre alle caviglie? Come li affronti?

Leggi le tue storie qui:

Are your bandages like old socks, they always end up at your ankles? How do you cope with them?

Read your stories here:

Posted in Activities, Books, Compression, Italian, Management, Treatment | Leave a comment |

Care of Children with Lymphœdema

Posted on 2024-02-28 by cricpadmin

Care of Children with Lymphoedema


Date of Publication: 2010
Author/s: Isabelle Quéré, Christine Moffatt

Description:
This focus document provides practitioners with an overview of childhood lymphoedema: the causes, presentations, and approaches to management.

Download

Posted in About, Activities, Books, Diagnosis, Living well, Management, Video | Leave a comment |

French camp 2024

Posted on 2024-02-24 by cricpadmin

We have been asked to say a little more about the forthcoming camp in Languedoc. News comes out slowly, but we shall add to it here. For our first educational video, please watch the stories of nine of our young people:

Une production de The International Lymphoedema Framework (ILF) et du Partenariat Français du Lymphoedème (PFL). Découvrez les témoignages de Théo, Marin, Arthur, Ludivine, Christopher, Guillaume, Soren, Léo, Anna, Austin originaires des quatre coins du monde à propos de leur lymphoedème.
Posted in Activities, French, Stories, Video | Leave a comment |

Camp 2024

Posted on 2023-12-16 by cricpadmin

We are excited to announce the International Camp to be held at a venue in France, 3rd-7th July 2024.

Further details to follow… watch this space!

The video above is from a previous camp held in Italy in 2017

Posted in Activities, Video | 1 Comment |

Montpellier June 2023

Posted on 2023-02-24 by cricpadmin

For further information visit:
Actions à destination des enfants – Partenariat Français du Lymphoedème (PFL) lympho.fr

A copy of the programme is available here

Posted in Activities | Leave a comment |

Montpellier May 2023

Posted on 2023-02-24 by cricpadmin

For further information visit:
Actions à destination des enfants – Partenariat Français du Lymphoedème (PFL) lympho.fr

A copy of the programme is available here

Posted in Activities | 1 Comment |

7* Campo Ludico educativo per bambini

Posted on 2021-09-12 by cricpadmin


Published by Anna Maisetti on her YouTube channel:

Lymphido: Ci impegniamo a supportare i pazienti di linfedema e le loro famiglie, per una migliore qualità della vita!

Posted in About, Activities, Living well, Video | Leave a comment |

Campo Ludico Educativo CMID 2015

Posted on 2021-07-11 by cricpadmin


Published by Elodie Stasi on her YouTube channel:

Elodie is our resident physiotherapist…

Posted in Activities, Video | Leave a comment |
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