Category Archives: Video

Getting the Treatment Right

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Published by BLS on its YouTube channel:

The British Lymphology Society exists to preserve and protect good health of people living with lymphoedema / chronic oedema. Lymphoedema occurs when the lymphatic drainage system fails; chronic oedema is indicative of failure of lymphatic drainage. Both of these terms are used interchangeably to emphasise the need to manage both the initial cause of the chronic oedema and the lymphatic failure concurrently.
thebls.com

What is lymphoedema? A deep dive…

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Courtesy of our resident physio, Élodie:

A deep dive into the plumbing of your body. We hope to provide alternative language versions, but if you are a tech-whizz, or know one, you may be able to persuade your smart phone to provide a simultaneous translation for yourself. If you do share how you did it with your friends here in the comments.

This video is included in Élodie’s Lymphobook – do have a closer look.

For more information follow this link…(to a location which does not yet exist but shall when someone provides the document)

French camp 2024

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We have been asked to say a little more about the forthcoming camp in Languedoc. News comes out slowly, but we shall add to it here. For our first educational video, please watch the stories of nine of our young people:

Une production de The International Lymphoedema Framework (ILF) et du Partenariat Français du Lymphoedème (PFL). Découvrez les témoignages de Théo, Marin, Arthur, Ludivine, Christopher, Guillaume, Soren, Léo, Anna, Austin originaires des quatre coins du monde à propos de leur lymphoedème.

Genetics and Primary Lymphœdema: Q&A

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Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Lymphœdema – a teenager’s perspective

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Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.