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Category Archives: Media

Lymphatic Malformations – part 2

Posted on 2020-07-29 by cricpadmin


Published by Children’s Hospital Colorado on their YouTube channel

Children’s Hospital Colorado: At Children’s Hospital Colorado, we see more, treat more and heal more kids than any other hospital in our seven-state region. Our mission is to improve the health of children through the provision of high-quality coordinated programs of patient care, education, research and advocacy.
childrenscolorado.org

Posted in About, Diagnosis, Video | Leave a comment |

ILF International Children’s Camp, Turin, Italy 2017

Posted on 2020-06-11 by cricpadmin


Published by ILF on its YouTube channel:

Posted in Activities, Living well, Stories, Video | Leave a comment |

Klippel-Trenaunay syndrome

Posted on 2020-01-03 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, Diagnosis, English, Video | Leave a comment |

Lymphœdema – a child’s perspective

Posted on 2019-12-06 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, Living well, Portuguese, Stories, Video | Leave a comment |

Children and lymphœdema

Posted on 2019-11-27 by cricpadmin


Published by ILF on its YouTube channel:

Posted in About, English, Stories, Video | Leave a comment |

Auto-bandage de la jambe

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, Compression, French, Management, Treatment, Video | Leave a comment |

Le système lymphatique et le lymphœdème primaires

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, French, Video | Leave a comment |

Auto-bandage des orteils

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, Compression, French, Management, Treatment, Video | Leave a comment |

Mon lymphœdème primaires en quelque mots

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, French, Living well, Video | Leave a comment |

Colorez vos bandages

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in Activities, Compression, French, Management, Self-care, Treatment, Video | Leave a comment |
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