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Category Archives: Languages

Camp 2024

Posted on 2023-12-16 by cricpadmin

We are excited to announce the International Camp to be held at a venue in France, 3rd-7th July 2024.

Further details to follow… watch this space!

The video above is from a previous camp held in Italy in 2017

Posted in Activities, Children's Camp, French, Video | 1 Comment |

Genetics and Primary Lymphœdema: Q&A

Posted on 2023-03-01 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, English, Video | Leave a comment |

Montpellier June 2023

Posted on 2023-02-24 by cricpadmin

For further information visit:
Actions à destination des enfants – Partenariat Français du Lymphoedème (PFL) lympho.fr

A copy of the programme is available here

Posted in Activities, Children's Camp, French | Leave a comment |

Montpellier May 2023

Posted on 2023-02-24 by cricpadmin

For further information visit:
Actions à destination des enfants – Partenariat Français du Lymphoedème (PFL) lympho.fr

A copy of the programme is available here

Posted in Activities, Children's Camp, French | 1 Comment |

Lymphœdema – a teenager’s perspective

Posted on 2022-02-25 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, English, Italian, Living well, Stories, Video | Leave a comment |

Genetic Testing for primary lymphœdema – a mother’s perspective

Posted on 2021-11-09 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, Diagnosis, English, Stories, Video | Leave a comment |

What do you need to know?

Posted on 2021-09-28 by cricpadmin


Published by Lymphie Strong on its YouTube channel:

Lymphie Strong – A Lymphœdema Support Community – is an online resource for people with lymphœdema by people with lymphœdema who know from first hand experience how challenging living with chronic swelling can be and how it impacts your life in both big and small ways.
lymphiestrong.com

Posted in About, English, Video | Leave a comment |

7* Campo Ludico educativo per bambini

Posted on 2021-09-12 by cricpadmin


Published by Anna Maisetti on her YouTube channel:

Lymphido: Ci impegniamo a supportare i pazienti di linfedema e le loro famiglie, per una migliore qualità della vita!

Posted in About, Activities, Children's Camp, Italian, Living well, Video | Leave a comment |

Campo Ludico Educativo CMID 2015

Posted on 2021-07-11 by cricpadmin


Published by Elodie Stasi on her YouTube channel:

Elodie is our resident physiotherapist…

Posted in Activities, Children's Camp, Italian, Video | Leave a comment |

Lymphœdema Children’s Camp 2020 – Lymphido

Posted on 2020-09-12 by cricpadmin


Published by Anna Maisetti on her YouTube channel:

Lymphido: Ci impegniamo a supportare i pazienti di linfedema e le loro famiglie, per una migliore qualità della vita!

Posted in Activities, Children's Camp, Italian, Living well, Video | Leave a comment |
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