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Category Archives: About

Lymphœdema – a child’s perspective

Posted on 2019-12-06 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, Living well, Portuguese, Stories, Video | Leave a comment |

Children and lymphœdema

Posted on 2019-11-27 by cricpadmin


Published by ILF on its YouTube channel:

Posted in About, English, Stories, Video | Leave a comment |

Auto-bandage de la jambe

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, Compression, French, Management, Treatment, Video | Leave a comment |

Le système lymphatique et le lymphœdème primaires

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, French, Video | Leave a comment |

Auto-bandage des orteils

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, Compression, French, Management, Treatment, Video | Leave a comment |

Mon lymphœdème primaires en quelque mots

Posted on 2019-08-27 by cricpadmin


Published by FAVA on their YouTube channel:
Filière santé maladies rares FAVA-Multi : Maladies Vasculaires Rares avec atteinte Multisystémique
http://www.favamulti.fr

Posted in About, French, Living well, Video | Leave a comment |

Mechanisms of Primary Lymphœdema

Posted on 2019-03-20 by cricpadmin


Published by LE&RN on their YouTube channel:
LE&RN’s mission is to fight lymphatic diseases through education, research & advocacy. We seek to accelerate the prevention, treatments and cures for lymphœdema, lipœdema, lymphatic anomalies, and the continuum of lymphatic diseases.

lymphaticnetwork.org

Posted in About, Video | Leave a comment |

Compression in Pædiatric and Primary Lymphœdema

Posted on 2019-03-08 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, Compression, English, Management, Self-care, Treatment, Video | Leave a comment |

Kids speaking about horses

Posted on 2018-08-01 by cricpadmin


Published by Heal on their YouTube channel:

Heal exists to raise awareness, educate and empower equine practitioners about equine lymphatic disorders specifically chronic progressive lymphœdema and chronic swelling disorders.
https://www.healequine.com/

Posted in About, Stories, Video | Leave a comment |

Pædiatric and Primary Lymphœdema – an overview

Posted on 2018-06-19 by cricpadmin


Published by VASCERN on their YouTube channel:

VASCERN, the European Reference Network on Rare Multisystemic Vascular Diseases, currently gathers 31 highly specialized multidisciplinary expert teams from 26 Healthcare providers (HCPs) and 7 affiliated partners HCPs coming from 16 EU Member States, and various European Patient Organisations. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Centre of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Posted in About, English, Video | Leave a comment |
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