About lymphoedema
About
- 7* Campo Ludico educativo per bambini
- Lymphœdema: Children's Camp - Montpellier 2012
- Kids speaking about horses
- What do you need to know?
- Att leva med lymfödem
- Auto-bandage de la jambe
- Born differently - the teen with the swollen body
- Care of Children with Lymphœdema
- Caveat!
- Children and lymphœdema
- Compression in Pædiatric and Primary Lymphœdema
- Genetic Testing for primary lymphœdema - a mother's perspective
- Genetics and Primary Lymphœdema: Q&A
- Getting the Treatment Right
- Infections and Lymphœdema
- It's Not Bad
- Klippel-Trenaunay syndrome
- Lymphatic Malformations – part 1
- Lymphatic Malformations - part 2
- Lymphœdema - a child's perspective
- Lymphobook
- Lymphœdema - a teenager's perspective
- Mechanisms of Primary Lymphœdema
- Mon lymphœdème primaires en quelque mots
- Pædiatric and Primary Lymphœdema - an overview
- Super Nan and the Secret Support Network
- The Big Book of Lymphœdema
- The first question is
- The Genetic Basis of Primary Lymphœdema in Humans
- Le système lymphatique et le lymphœdème primaires
- Auto-bandage des orteils
- The second question is
- What is lymphoedema? A deep dive...
Frequently asked questions awaiting replies:
- What measures can I take to help prevent infections for my child?
- What measures can I take to help prevent infections for the child?
- How do I recognise cellulitis?
- What is cellulitis and how do I recognise it?
- Questions on made to measure/orthopædic shoes…how and where to get them (application process) Are there any support groups for parents of children with lymphoedema?
- Are there any support groups for children with lymphoedema? Online/locally?
- As our first child has lymphoedema, how likely is it that any other children we have will also have the condition?
- We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema?
- Putting the stockings on my child is difficult. Is there any practical help for this?
- Are there any tips or devices to aid putting on and take off the compression garments?
- How can we get supplies of hosiery when our child needs it?
- Where can my child get a diagnosis? (locally/nationally)
- Is there any news in the study of the genetic component of the disease?
- Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis?
- Why is lymphoedema not well known and why are there so few doctors who knows about it?
- Are there websites that could tell our child more about lymphoedema?
- What resources are available to learn more about lymphoedema?
- Are there many children with lymphoedema?
- How many children have lymphoedema in the world?
- Can we pay for extra hosiery if our child needs it?
- What research is being done on lymphedema?