Diagnosis

Frequently asked questions awaiting replies:

• What kind of exams are necessary to diagnose lymphedema?
• How do I recognise cellulitis?
• What is cellulitis and how do I recognise it?
• What kind of treatment is available for my child?
• What are the different type of treatments available for lymphoedema?
• When lymphoedema does not respond properly to treatments (e.g. bandaging) what can be done? Change technique?
• What can I do if the oedema does not respond to the treatment?
• Management of genital lymphedema Surgery for children – what age is appropriate (is there a too young stage?) What kind or surgical options are available and at what age is it appropriate?
• As our first child has lymphoedema, how likely is it that any other children we have will also have the condition?
• We have one child with lymphoedema, how likely is it that we could get other children with lymphoedema?
• Where can my child get a diagnosis? (locally/nationally)
• What specialist should I see for a diagnosis of my child?
• What specialist should I see for treatment of my child?
• What are the different specialists that can diagnose and treat a child with lymphoedema?
• How can swelling in the pelvic floor and on the hip be kept down? and hips?
• I understand that lymphoscintigraphy may help us understand the cause of my child’s lymphoedema but will it help in what treatment he will receive?
• Risk of developing genital oedema What are the risks of developing genital oedema and what specialist can help?
• Why are there so few experts in the field of lymphoedema causing us to have to wait a long time for diagnosis?
• Why is lymphoedema not well known and why are there so few doctors who knows about it?
• At what age can the child have a lymphoscintigraphy?
• Since I have not found a genetic match, what tests could be performed to understand the nature of my lymphatic dysfunction?
• And assuming we can understand it, how much more effectively – compared to the usual and generic lymphoedema management practices – could the oedema be treated?
• Should I/my child get/can I get a genetic test for my child/me?
• What is the purpose of a genetic test?