At the recent camp held in June 2024 near Montpellier we appointed three young people as ambassadors for the exchange of ideas and information, and promotion of good practice amongst young people.
These three and some others will communicate in a WhatsApp Group. If you would like to join the group, please let us know. Parents too are invited to join their own WhatsApp group. We may have groups available in different languages. Please contact us if you would like more information.
Reported on LinkedIn
CLAP DE FIN de l’international children camp 2024 !
170 personnes venues de 11 pays différents se sont retrouvés pendant 4 jours autour d’une même cause : le lymphœdème. Pour que les enfants touchés et les familles ne soient plus seules, pour que le lymphœdème soit mieux connu, mieux reconnu, pour que la recherche avance.
👏 aux 28 familles venues d’Allemagne, d’Espagne, de France, d’Italie, d’Irlande et de Suisse qui nous ont rejoint en Ardèche. Merci pour leur confiance ❤️
👏 aux 39 professionnels et aux 16 bénévoles venus d’Angleterre, de Belgique, d’Espagne, des Etats-Unis, de France, d’Italie, d’Irlande, de Pologne et du Portugal.
👏 aux organisateurs, le Centre de Référence de Montpellier et le CMID Italie, et ses partenaires le PFL, l’AVML, Lymphido, l’Italf et l’ILF. Merci aux donateurs et aux mécènes.
👏 à Isabelle Quéré et à Elodie Stasi pour permettre à ces camps internationaux d’exister et pour tout leur travail auprès des enfants et des familles.
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A l’approche des JO, tous nos athlètes du camp international ont déjà gagné.
🏅équipe du CHU de Montpellier : Isabelle Quéré, Sandrine MESTRE GODIN, Emilie Valdelievre, Maria de los Santos DONOSO IZQUIERDO, Patricia Maquez Cardenas, Géraldine Davidou, Sandrine Roussillon, Agnès Blanc, Cédric Robert, Anaïs FORESTIER, Stéphanie Badouaille, Fabienne Mourgues, Hélène Pourquier et les organisatrices Domitille Ferron et Morgane Denis
🏅équipe italienne : Elodie Stasi, Lorena Acquadro, Fabio Romaldini, Daniela Vaglio, Sara Balducci, Alessandra Gazzotti
🏅équipe anglaise : Christine Moffatt, Susan Noerregaard, Chris Norregaard
🏅équipe irlandaise : Meadbh Mac Sweeney, Norah Kyne
🏅équipe espagnole : sonia ehrenberg, Obdulia Moya, ISABEL FORNER CORDERO, Eulalia Torres
🏅équipe belge : Jean-Paul Belgrado, Véronique Fuchs, Kevin Dusart, Cindy Santos de Matos
🏅équipe de l’hôpital Cognacq-Jay : Caroline Fourgeaud, Patricia Traineau
🏅bénévoles du PFL et de l’AVML : Jean-Pierre Bécus, Marlène Coupé, Samantha Pierret, Laurence Toulet-Delaporte, Olivier Kkoweb, Audrey Baille Peyruchaud, Christine Ferrotti, Guy Doladille
🏅les autres bénévoles : Emmanuel Pajanipadeatchy, Pierre Gonon,
peron anthony, CHRISTEL JOST, Jerome Monin, Antony Luce, Mathéo Roussillon
🏅le dessinateur Maxime Masgrau et le photographe Romain Guédé
🏅les guests internationaux : Manuela Lourenço Marques, Andrzej Szuba, Stanley Rockson
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Centre de référence Lymphoedèmes primaires / Partenariat Français du Lymphoedème / AVML / ILF • International Lymphoedema Framework / CHU de Montpellier / Fonds Guilhem – CHU de Montpellier / Filière FAVA-Multi / VASCERN, European Reference Network on Rare Multisystemic Vascular Diseases / Société Française de Lymphologie / Société Française de Médecine Vasculaire
Written by Jamie Gaddis Stephens (Author), Jessica Gaddis English (Editor) It’s Not Bad dives into what is called, lymphœdema. Primary lymphœdema affects children all around the world but it is a rare condition. This story is geared towards children who struggle with understanding their disease.
Available from the Jo Rising Foundation
What happens when children see your lymphœdema for the first time? How do you deal with it? How do they deal with it?
Michelle Freke’s book explores these questions in a child friendly, super-hero type way.
Stora boken om lymfödem är speciellt riktad till barn. Den förklarar på ett lättförståeligt sätt vad lymfödem är och hur det kan behandlas. – SÖF
Författare är Dr Jacquelyne Todd 
ISBN 978-91-637-2163-2
The award-winning children’s book The Big Book of Lymphoedema aims to help children and families understand the condition by presenting useful information in a colourful, eye-catching and child-friendly format. Originally launched in April 2010, the book was written by Dr Jacquelyne Todd, who was a physiotherapist consultant in lymphoedema at The Leeds Teaching Hospitals NHS Trust, before she retired in 2013. A new edition with subtle updates is available from the LSN.
Published by BLS on its YouTube channel:
The British Lymphology Society exists to preserve and protect good health of people living with lymphoedema / chronic oedema. Lymphoedema occurs when the lymphatic drainage system fails; chronic oedema is indicative of failure of lymphatic drainage. Both of these terms are used interchangeably to emphasise the need to manage both the initial cause of the chronic oedema and the lymphatic failure concurrently.
thebls.com
Courtesy of our resident physio, Élodie:
A deep dive into the plumbing of your body. We hope to provide alternative language versions, but if you are a tech-whizz, or know one, you may be able to persuade your smart phone to provide a simultaneous translation for yourself. If you do share how you did it with your friends here in the comments.
This video is included in Élodie’s Lymphobook – do have a closer look.
For more information follow this link…(to a location which does not yet exist but shall when someone provides the document)
Élodie our exotic, knowledgeable and wonderful Fisioterapista has written an exciting new book:
Open the book in its own page:
Le tue bende sono come vecchi calzini, finiscono sempre alle caviglie? Come li affronti?
Leggi le tue storie qui:
Are your bandages like old socks, they always end up at your ankles? How do you cope with them?
Read your stories here:
